Combating Muscular Dystrophy thru Supplements & Diet

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REE01
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Combating Muscular Dystrophy thru Supplements & Diet

Post by REE01 »

Considering benefical Supplements & Diet for Muscular Dystrophe

In the early 90's the medical science had therapy's for Dystrophin lacking MD type conditions, tested and proven in the lab, called Utrophin, and then even a 2nd called Heregulin, and still no human has yet recieved either therapy 15 years later, and at this time studies are just starting to be done on DMD patients using Gentamicin in Europe, it is expected to cure a very low percentage.

For those living today that can't afford to wait on solutions including FDA approval, Natural remedies can serve as helpful sustaining elements during the interim. Doing this you must use correct substances & amounts, if your an experienced Dowser you should be able to put yourself in the ball park. If not follow the suggestions and daily amount's on each label. Here are some suggestion's...

You need Sarcoglycan's, these are found in the male flower pollen, bee's carry pollen to the hive its remnants are found in BEE POLLEN / PROPOLIS. Person's with plant allergys should use caution.
You need to curb the PRIMARY destructive mechanism causing the casacading failure cycling through the muscular cells using IGF-1. In nature the highest amounts of IGF-1 are found in the deer antler itself underlying the velvet. It is harvested during the peak of new velvet growth.
You need to clear your body of free radicals COQ-10 is 50 times more powerful than Vitamin C. Take your highest dose before bed, so it is absorbed during your bodys recuperative resting cycle, just like you would vitamin C.
You need to normalize your depleted intake of the Mineral SELENIUM thru a standard supplement, plus add Vitamin B-50 complex, Vit E and 0MEGA 3 which effects smooth muscle function, inflammatory processes, constriction and dilatation of blood vessels.
You can promote higher metabolism for full effect of everything listed to be absorbed to the fullest capacity by your body thru use of GREEN TEA EXTRACT, (morning and evening) it is 20 times more powerful than Vit E at scavanging free radicals as a bonus, and supports effects similar to those found in IGF-1, by slowing cascading cell failure. Turmeric Extract as a 2nd alternative also raises metabolism, increases circulation and relieves tension in the joints, popularly used for RA type conditions.
CREATINE powder can be helpful in a low 5- 15 mg dose depending on your weight, before your most active chores of the day.

Caution:The Institute of Medicine establishes the maximum tolerable level of B-6 for adults with neuropathic conditions at 100 mg per day higher amounts have been reported to contribute to lack of sensation and adverse effects. Over 500 mg a day can cause irreversible nerve damage.



You may need to reduce your cholesterol/calcium levels in some adult cases, this is done thru Statins in the drug market, thru natural remedy by RED RICE YEAST, or a change in diet.

Ginger has warming effects on torso muscles, reduces inflammation, and lowers blood pressure, making the general use of Ginger helpful. Caffeine and gas relieving antacids aren't great but they interfere with calcium absorbtion, as do laxatives.

Foods high in oxalic acid such as spinach, swiss chard, beet greens, rhubarb, and brewer's yeast interfere with your ability to absorb calcium also. Plants high in oxalic acid such as rhubarb (Rheum officinale) may increase the formation of kidney stones, thru the rapid expulsion of calcium over time.

Diet HIGH PROTEIN, There are the animal proteins and vegetable proteins. Vegetarians need to eat more quantities of lentils, legumes, beans, to supply the extra protein requirements. All meats have plenty of protein within the muscle tissue, but for you Chicken and turkey without the skin are preferred, they also reduce calcium absorbtion. Fish is an excellent protein. Salmon contains over 20% of essential fatty acids.** Data also suggest that in experiments dogs fed a diet containing a far higher total percentage of chicken breast protein (white meat's) had a greater potential to regulate calpain-mediated degradation of muscle protein.**

You should be drinking half your weight in ounces of fluid each day. Most persons with MD do not drink enough fluilds.

Don't sit inside, try to get out in the morning sun everyday listen to the birds, take the time to enjoy the little things overlooked by everyone else. It will bring you traquility in adversity, while you receive Vitamin D from the suns warming rays. In colder climates sit by a sunny window.

In Research

One binding agent used the lab is AUXIN, in nature only the PEA family hold's, it's base compound Acetic acid, it is found in the flowers or young pea pod seed and the highest concentration of the growth factor comes at 7-8 days after the pea developes. Acetic acid is also the chemical compound responsible for the characteristic odor and sour taste of vinegar. Typically, VINEGAR is about 4 to 8% acetic acid. As the defining ingredient of vinegar, acetic acid has been produced and used by humans since before the dawn of recorded history. In fact, its name comes from the Latin for vinegar, acetum. Apple Cider Vinegar is readily available as are young peas. In the lab the combination of Auxin, and Utrophin in fact corrected the zero level's of dystrophin, found in DMD in mice. Unless you also have a problems with type 2 diabetes, vinegar is not for most. Eat peas often and corn, use a vinegarette dressing for your salads.
HEREGULIN is a peptide that re-activates the development of natural dystrophin 3x fold, improving muscle and response tested in the European labs in animal studies also, this in the future may be a therapy.

There is a weak RNA strand strengthener also it's called ZEATIN. It is found in all plants, and particularly in coconut milk, but not in the extremely high concentrations we need, in nature it must be extracted and isolated then brought to it's purest form as Zeatin. It is currently used as the secret ingredient in patented wrinkle creams, as are Pea extracts and coconut in others. Skin cream with Zeatin turns back the clock on an aging face and wrinkles go away.
Zeatin tested in spinal muscular atrophe or SMA strengthened the weak RNA strand causing the disease, and reversed it. In the lab .01 to 500ml solution, using a specail delivery technique, did in fact generate new Atrophy resistant RNA strands and micro cells, reversing the effects of SMA neuromuscular degeneration.
Spraying a solution of .01 / 500ml zeatin on any green leaf of a tree in the fall would extend it's life to be the last remaining leaf. In times of heat stress spraying zeatin on a plant it would be the least effected of the crop.

Coconut milks main ingredient is LAURIC ACID, it is also a main ingredient in a mothers milk. In pill form it's called lauricidin as a dietary supplement has shown extraordinary and exciting results as an antibiotic and an anti viral agent. The pill is considered a form of chelation therapy by some, it is used for .......Inflammation, autoimmune conditions of the nervous system, eczema, high blood pressure, hyperactivity, irritable bowel syndrome, arthritis, mood swings, flu's, infections, peptic ulcers, benign prostrate enlargements in men, genital herpes, hepatities C, and Chrons. Supplementing coconut oil reduces the need for vitamins. It does not contain cholesterol, does not increase blood cholesterol level, does not promote platelet stickiness, thereby reducing the incidence of intra arterial blood clots. Further, coconut oil does not contribute to atherosclerosis (thickening of arteries), or heart disease, studies have shown that it helps control diabetes, supports immune system function, helps osteoporosis (softening of bones in old age). Most importantly Lauricidin insulates the RNA and DNA structure of cell's against destructive signal transduction and toxic formations. Making this another possibility to consider thru intermittent bi-weekly LAURICIDIN use (on system clearing days ) or simply cooking with coconut oil, or alternately olive oil for it's benefits.

Additionally, Immunoblots detected autoantibodies to calpastatin in 57% of RA patients; this incidence was significantly higher than that observed in other systemic rheumatic diseases, including systemic lupus erythematosus (27%), polymyositis/dermatomyositis (24%), systemic sclerosis (38%), and overlap syndrome (29%).
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REE01
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Researchers add spice to battle neuromuscular disease

Post by REE01 »

The research by scientists at the University of Rochester Medical Center appears in the March 6 issue of the journal Nature Medicine.

experiments reported in Nature Medicine, mice carrying the human gene that were treated with ASC-J9 experienced a remarkable improvement. Their muscles appeared to work normally, and they lived 40 percent longer than the untreated mice.
Among the compounds tested is ASC-J9, a synthetic chemical compound that is loosely based on a compound found in curcumin. Significantly, however, ASC-J9 has been chemically modified compared to its natural counterpart to make it much more powerful.
Curcumin is found in Turmeric Extract, for higher potentcy; See Example: http://www.agelesscures.com/index.php?m ... c0214a96f0

Read the full story here: http://www.physorg.com/news93615944.html
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Paul Mellor
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Post by Paul Mellor »

As a sufferer of Dermatomyositis (DM) a form of muscular dystrophy I think some of your observations could well mislead people .The nature of DM is that it flares up and the suffer comes out of remission into the full blown disease this is extremly dangerous and can prevent you swallowing properly movement becomes extremly difficult and you get extreme fatigue you also get breathing problems ,lumps and open lesions on your skin. I have now had 2 1/2 years of chemotherapy for it and suffer from constant flares. In your article you suggest that you go out in the sun, this is in fact one of the worst things you can do as your whole body swells up and an increase of steroids is required a sufferer should wear factor 50 suncream. You also state that calcium intake should be reduced however as treatment can involve the intake of upto 60mg of prednisilone daily then calcium in food as well as a supplement must be taken to avoid osteoperosis in later life. When I am very ill i find that dowsing is extremely erratic and I would not trust it to give me a clear indication of what supplement to take as you suggest . Finally with all of the current treatments for DM many of them as a result of the organ transplant medication and nitrogen mustards from the first world war it clearly states that all supplements and herbal remedies should not be taken as there has not been the research into the side effects and as this DM only affects approx 6 people in a million.
Paul Mellor
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Post by REE01 »

Paul, I'm sorry your very rare form of myopathy / auto immune disease doesn't fit the parameters for my outline of suppliments to be of benefit to your unique condition and it's stage of development, there are over 40 types of MD. No one solution ever covers every condition logically. However the suggestions are valid and easily veriviable if you do some research on-line, for many of the 9 major types of classic MD. You have posted what might benefit persons in your situation, as I have researched for persons in my situation, my suggestions befit the main group of classic MD sufferer's, who have early to mid stage slower progression forms of classic MD, the info is of great benifit to the groups who have NO medical options. Try to stay positive, I'm sorry your skin condition has come to the point were you can't enjoy going out in the morning sun for 20 minutes a day, I suppose the brighter side in your case is you have some medication for your condition, most of us do not my friend that's why I researched, dowsed and wrote the topic, to benefit those persons. I personally take everything on that list that is avaliable for my MD, and it helps !!! It is misleading to suggest otherwise.
Thanks for bringing to light the complexity of issues concerning your auto immune disease, Dermatomyositis MD your personal journey and experiences.

Immunoglobulin IV is helpful for some auto immune disease sufferers when taken every 2 weeks, unfortunately each treatment / IV bag is 6000.00 US, but it is rarely used or considered due to the high cost to health insurance co. here, not due to it's lack of effectiveness.

The lumps in your skin are formed by excess calcium deposits. Side effect's of constant prednisilone use are neuropathy, vascular necrosis, osteoporosis, gum and oral problems. Chemo "yikes" another cause of more neuropathy and skin problems !!! 2 1/2 years of chemo ???!!! Organ transplant medication in WW 1, concerning the pioneering efforts of skin grafting ??

The 9 primary types of MD are not auto immune diseases.

MDA Wiki link : http://en.wikipedia.org/wiki/Muscular_D ... ssociation

:idea: Paul you might try putting down your pendulum and using a pen in hand to dowse, read my pensweep site giving that method a try. There will be no unsure dowsing then, only common error's if you are abled enough. I would be glad to show you how to pensweep and go thru a few long distance examples with you if you like.
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Paul Mellor
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Post by Paul Mellor »

Thanks for your very interesting reply and suggestions, the problem I have at present is that despite the fact that there are medications for DM I have yet to respond and have a CK level hovering around the 4000 mark. At what stage do you say no more meds and try just dowsed supplements, its would not be an easy decision as you would lose your consultant and help from the NHS. I will try the pen sweep method when I return from my vacation. All the best Paul.
Paul Mellor
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Post by REE01 »

At what stage do you say no more meds and try just dowsed supplements, its would not be an easy decision as you would lose your consultant and help from the NHS.
It is an easy decision when you have no other solutions or options to sustain your strength, longevity and or quality of life.

Just reminding you, and all interested again here Paul :
the info is of great benefit to the groups who have NO medical options.
For those living today that can't afford to wait on solutions including FDA approval, Natural remedies can serve as helpful sustaining elements during the interim. Doing this you must use correct substances & amounts, if your an experienced Dowser you should be able to put yourself in the ball park. If not follow the suggestions and daily amount's on each label.
Have a nice vacation Paul, I just got back from a little trip to St Augustine myself.
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"Common sense is like caffeine they both wake up the brain cells"
Paul Mellor
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Post by Paul Mellor »

HI were you dowsing in St Augustine? I googled it and it seems to have a lot of history in quite a small area.
Paul Mellor
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